World Haemophilia Day | World Haemophilia Day SMS | World Haemophilia Day Greetings | World Haemophilia Day Pictures| World Haemophilia Day Scraps

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About World Haemophilia Day :

The World Federation of Haemophilia (WFH) decided to observe April 17th as World Haemophilia Day in 1989 in honor of WFH founder Frank Schnabel, as the date was his birth anniversary.

World Haemophilia Day is celebrated all around the world to encourage people to improve life of Haemophilia patients and to raise awareness of bleeding disorders.

“Psychology for people with hemophilia, the way I see it, is meant to prepare a person to understand his own personal way of experiencing hemophilia. It helps patients to define hemophilia, to talk about it and to learn more about one’s self, including limitations and potential,” says Cassis.

Her professional focus on the bleeding disorders community happened “by chance- and by my curious nature,” she says. She was introduced to the field when she took a course in prevention psychology and collaborated with a group of students at the University of Montevideo in Uruguay who were working on a project for the Uruguay Hemophilia Association.

With proper care and treatment, including comprehensive care and factor replacement therapies, people with hemophilia can lead longer, more fulfilling lives than ever before. The global community has made significant progress in raising the standard of care for hemophilia over the past 50 years. In fact, thanks in part to therapies available today, life expectancy for hemophilia patients has increased to more than 60 years. But significant disparities still exist, as 75 percent of patients worldwide do not have access to appropriate care.

Recognizing this great inequality, Baxter has partnered once again with the World Federation of Hemophilia (WFH) to launch “The Many Faces of Bleeding Disorders – United to Achieve Treatment for All” video podcast (available at wfh.org/whd). It is the second in a series designed to educate viewers about hemophilia and other inherited bleeding disorders, and to call attention to disparities in care.

Future does not look too bright as far as haemophilia is concerned. More number of people are expected to succumb to this disease about which there is very little information and awareness. Lack of treatment can result into disability and possible death. Most of the haemophilic patients are susceptible to viral infections like hepatitis B, hepatitis C and AIDS that further complicates the case. Haemophilic patients constantly need transfusion of blood. As of now, there is no permanent cure for this disease however, with the help of timely treatment and information, situation can be managed. Introduction of new life saving drug AHF (Anti Haemophilic Factor) is proved helpful in reducing haemophilia. On April 17, healthcare communities and organizations try to raise awareness of bleeding disorders and emphasize the importance of comprehensive care in haemophilia health care delivery.

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